Wednesday, September 22, 2010
One Step Back...
Things seemed to be going better last night. He slept after coming home from the blood test and the terrible seizures he was having on Sunday and Monday night, seemed better. He was on 1/2 liter of oxygen yesterday and I removed it last night because Dear Son had pulled it off and didn't seem to want it anymore. His oxygen saturations were great yesterday and last night. They were fine this morning as well and I also checked them repeatedly throughout the day.
Late this afternoon, he started having some seizures during his nap. At one point, he yelled out pretty loud. I went in to check him and he was sound asleep. By around 7 p.m. or so they started to cluster and have been clustering for the last two hours. I repeatedly used the VNS and also sang to him; for some reason that seems to help relax him a bit even if only momentarily. I checked his oxygen and it had started to fall and was down to 88 so I added a liter of oxygen around 7 p.m. hoping to boost him up. Instead, it's been two hours and his oxygen hasn't improved so I increased it and will watch him. I am not sure why it's dropped since he seems o.k. other than all the seizures. I want his oxygen saturation to increase and stabalize before I reduce the oxygen. Sometimes he needs more oxygen at night but like I said previously, he had been doing fairly well. I am not sure if these seizures are causing some issues for him.
Hopefully, we'll hear back from the doctor tomorrow after he gets the lab work. If not, I'll have to touch base with him to see what else we can do. In the meantime, I gave one of his midnight seizure meds a bit early to see if I can stop these seizures before they get out of hand.
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