Tuesday, January 20, 2009


Dear Son will be admitted to Big Academic Medical Center for some EEG testing for a few days. We are scheduled for tomorrow however I am hoping I can get them to let him be admitted later today, so Dear Son's Dad can help me lift him in/out of the car. I forget that I can no longer handle him. Dear Son appears to be having some seizure issues however at this point, it's pretty hard to determine, without an EEG, the presence of seizures. Sometimes, there are no outward signs and we learn he is seizing all the time; other times, we see outward signs but no presence of them on the EEG.

I apologize for the delay in posting recently. I switched to a new ISP and I've been transferring my e-mails to my new account. I tried to use True Switch for that service however they transferred some and then the process was aborted. I searched for another service however I couldn't find one on-line so I ended up doing this manually. Yikes, what a job. I had been with the same ISP for over eight years.

As a result of the admission, I probably won't be posting for a few days. Photo above is of Dear Son at school last November. They made dog treats and sold them at the school fair with proceeds going to the local Humane Society. Dear Son loved making them. He especially loved it when his teacher tossed flour on his tray. Dear Son's hands are not functional and he's been working very hard this year on learning to use them. You can see the dystonic nature of his hands in this picture. All of his fingers are also double jointed and lack tone which make using his hands more problematic. You can see the finished treats in his hands. It's probably my favorite picture of him. His teacher has really done an outstanding job of helping his use his hands in a variety of tasks throughout the day and in ways that not only challenge Dear Son but things he really enjoys. I think they made these dog treats every day for around two months. He certainly enjoyed making them.

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