Monday, January 06, 2014

New House Bathroom Pictures


Happy 2014!  It's hard to believe we've been in our new house 8 months already. I feel like I did nothing but work like crazy all of 2013.  First it was looking for a home, then getting the mortgage, then getting ready to move, moving in and everything that comes with it. All while making all of Matt's food from scratch and taking care of him. Whew! It seemed like a lot. Now, things are feeling more like home plus a lot of things are done now. I love knowing that once everything is done, that I can relax for a while. 

Here are some pictures of my new bathroom. As a reminder, I purchased a townhome that was built in 1986 but was totally redone when it was purchased by a real estate agent who flipped it.  I always thought I'd be the type to redo things however I must say, it's been great moving in and having everything done already. Well sort of...while everything is mostly new, it was more like moving into a new home since there weren't any towel bars, curtain rods, closet organizers, blinds, etc. 

I think my bathroom is probably one of my favorite rooms. Honestly, this bathroom is so me that I don't think I would have made different selections. They put travertine tile on the shower walls and floor and then did a beautiful dark wood vanity with a travertine marble top.  They used bronze hardware in the sink and tub/shower and had a brown vanity mirror.

To complement this, I added some bronze towel bars, a towel hook, new wastebasket, toilet bowl cleaner and toilet paper holder in bronze. I added some tan/cream towels with a regal design. For the shower curtain, I put up two rods and put the liner inside then added drapery panels outside for a longer, more elegant curtain. Some silk roses in a crystal vase on the counter. I still have to look for a wool rug but that will come later this year. I need to look around a bit. Until then, I have two rugs that were there when I moved in that I'll use for now. The travertine floor is just gorgeous and I love the paint color. They used Benjamin Moore's Bone White as the paint color and used it in my master bedroom. It doesn't photograph very well, but it very pretty. I liked it so much, I've painted the kitchen and hallways the same color and will have the living/dining/foyer painted the same. Basically, the whole house will be this color, lol.








 I hope you enjoy the pictures. I'll try to be a little more timely with the rest of the photos. I just took some pretty kitchen photos this weekend.

Friday, November 29, 2013

Best Toys and Gifts for Special Needs Children


Back in 2006, I wrote a blog post titled, "Best Toys and Gifts for Special Needs Children". Since that time, it's been one of my most popular posts. Last year, I updated it and I thought I might reprint it again. I poured over the toy catalogs and websites looking for those toys that I thought were really good. I was amazed to find that there still wasn't a lot to pick from so I decided to do a few things to make it easier. First, I created a link at the top of my blog for "best toys and gifts" and I've added all of the toys I'll talk about today. I have included pictures and links for each toy along with a description of why I like the toy and how I think the child would use the toy or an explanation of how Dear Son used the toy. Disabled children enjoy many of the same toys that normal kids do however when they play with the toy, they play with it whatever way is easiest for them. In Dear Son's case, he had poor trunk control, couldn't sit up, no use of his arms or hands but liked to play with things with his legs, feet and/or mouth. I have also included a link for all of the toys today to the Amazon website. If you can use this link, I'd appreciate it-it doesn't cost you any more for the toy than going to Amazon directly, but Amazon pays a small referral fee and I use this to help with Dear Son.

Some of the best toys can be found in a few places:

1) The 0-24 month aisle typically has the best selection of toys that severely disabled children can actually do. Most of the toys in this aisle require gross hand or foot movements to activate.
The down side of this aisle is that often disabled children's chronological age exceeds their developmental age so sometimes these items might work for the child however the child is too large or tall for the item.

2) Many stores such as Target or Walmart have these cheap toy aisles where you can get toys for $20 and under. In these aisles, you'll find things like musical keyboards, etc. What is great about these aisles is that these toys are kept "simple" which means they are easier to operate for disabled kids. Often times, toys can be too complex for our kids. In this aisle, you'll find a simple keyboard that plays entire songs when you press one key. In the more expensive aisles, you'll find keyboards where the keys light up to show a child where to press, in hopes of helping them learn to play. Or the keyboard will come with a microphone for the kid to hold and sing. Often times, you don't need any of those things. Simple is best.

3) Be sure to check out Walgreens and drugstores for toys. One of the best toys Dear Son ever owned was this train that I got at Walgreens. It went around a 36 inch round track. I set the train and tracks on the family room coffee table and he would lean on the table and use his arm to knock the train off it's track. Then he would laugh. He loved working hard to get his arm over enough to knock the train off. I wished I could have had a tunnel for the train too; he would have enjoyed that. I tried to purchased nicer trains after that but the Lionel ones didn't work as well for Dear Son-the track was too sensitive and the train kept coming off. With the Walgreen's train, Dear Son could be a little rougher and knock into the table and the train would keep moving.

4) Amazon-It's often hard to get out and shop with a disabled child so it's easier just to shop online with Amazon and have it delivered to your door.

Without further delay, here are toys that I recommend. For your convenience, I attached a link to Amazon and have also listed the current price of the toy as of today.




I can't say enough good things about this product. This is a great product for special needs children who have poor arm/hand control or poor trunk control. They can knock the pins over several ways-with their hands, their head, their arms or by bumping the table. My son couldn't roll the ball but loved knocking them down by the ways I described. He loved the music it played and got such a kick out of things crashing. In addition, it was a great way to help him learn to use his hands/arms in occupational therapy by knocking the pins down.






Musical Hands Mat $39.95
My son used a musical mat similar to this when he was a baby and learning to roll over. The physical therapist would lie my son on the mat and then help him roll over. As the child rolls over, the music is their reward thus helping them work on rolling over. This mat allows you to set it up to hear each note or to hear complete songs. When babies can't move at all, you want a maximum reward for a small movement, meaning you want to activate the music with the slightest movement. I don't think they'll use it like the child shows in the photo, meaning placing their hand on it but rather as a tool to help them learn to roll over.

Fisher-Price Precious Planet Kick and Play PianoFrom Fisher-Price $29.99

This toy would be great for a child who had good foot/leg control but limited hand control. It would encourage them to move their feet. Also, if placed in their crib, or even on the floor, it would be easy to activate with the slightest movement.


Vtech Little Smart First Words Plus Toy From vtech

Five stars for this toy! I used this toy when my son was very small and I wasn't sure if he even knew what was going on. I would hit the Mama button and after a while, he was able to find that button and hit it. He was able to learn where the Mama button was and also some of the other buttons. This was great because he couldn't speak. I did work with him on this toy every day so it wasn't like he learned it by himself. When he pushed on the buttons, he did it with his mouth/chin, not his hands (Dear Son didn't have any use of his hands/fingers.)

Here are two examples of these bounce back dolls. The base is filled with sand and the toy is made of vinyl.







Rocket USA Bozo Bop Bag $16.99From Rocket USA

This product is great for a child who can't sit up but can use his legs. They can lay on the floor and use their legs to kick the Bozo down and it bounces back up. It's important to remember that special needs kids need ways to release energy just like regular kids do. My Dear Son didn't have use of his hands or arms but his legs and feet worked well. He loved this. The other reason this is good is because as they are kicking and moving their legs, they are strengthening their core which is great for kids with low trunk control or for kids who can't walk. Any time you can help them increase their core muscles, it will help them for walking.

Rocket USA 46 Inch Bam Bam Bop Bag Obama $34.98From Rocket USA

See Bozo review for comments.










Easy-Twist Play Tent House: Premium JUMBO Size Six Sided Hexagon $38.60From eWonderWorld

This toy is great if your child can't sit up. My son had no trunk control but good use of his legs. He loved to lie down in the ball pit and take his legs and press down on the sides of the tent to try to knock it over. Often times, he'd play and then get tired and liked to fall asleep in there with balls on him of course! This ball pit is similar to the one he had and he was able to lie on his back in there and not choke on anything. I would not recommend lying a child who can't roll over face down in there. I never did! That being said, I believe it to be safe or I wouldn't recommend it. This was one of my son's favorite toys. **You need to order balls to go in here! 200 Plastic Pit Balls for Play Tents: 4 Colors - Red, Yellow, Green, Blue $42.60From eWonderWorld

These are the balls to go in the ball pit.

Alex Ready, Set, Go! Red Trike $49.99 on sale (Regular Price $199.99) From Alex Toys

Love this trike! Oh, how I wish they had something like this when Dear Son was young! I like the fact that it has a tall back, has seatbelts and straps, has a umbrella to protect against the sun and has a handle to push them. I think this would be a five star toy! Great for a child with poor trunk control but legs/feet that move.







Playskool Chuck My Talking Truck $31.58 From Playskool

Dear Son loved Chuck the Talking Truck, especially when he crashed into the wall or something. It's been upgraded since then and Chuck "comes" when you call him, meaning it's voice activated. Regardless, I think this would encourage vocalizations of some kind with the kids. Even if your child couldn't vocalize, you could call the truck.


Photo of Dear Son listening to, "Twas the Night Before Christmas Story" by Mr. Christmas.




Mr. Christmas Winter Wonderland Village Christmas $55.60

This is the item that I ordered for Dear Son this Christmas. It's a train that goes around the village which is comprised of a church, townhouse and Christmas tree. It plays 15 Christmas carols and 15 year round classics. This also comes with an A/C adapter. This items typically retails for $80 or more however I found the best price at Amazon. The A/C adapter can drive up the price a bit on these products however it's really great. Dear Son listens to these so much that I'd have to replace the batteries constantly so the A/C adapter is appreciated. This item is fairly small, only 10.75 inches wide which will be perfect for his nightstand since he has to lie down a lot since he can't sit very long. Also, he loves trains so this product will be perfect for him. He'll love to watch that train go round and round and the music will be very soothing. One thing I personally like about Mr. Christmas products is that the music is really nice and doesn't get on your nerves after hours of non-stop use. As with all Mr. Christmas products, they come with a volume control.








Mr. Christmas Symphony Surprise
My son loved this item. Mr. Christmas makes high quality musical items that my son would watch for hours. What's great about Mr. Christmas musical items, versus other musical products, is that they have a volume control and the sound quality of the music is good. Cheaper musical items have poor sound quality or the volume control is really loud and scares the kids or is annoying. Mr. Christmas items have been a favorite of my son's for years. While this one is currently unavailable on Amazon, I have purchased Mr. Christmas musical toys at Target, American Sales or home improvement stores. Each year, Mr. Christmas develops new musical items. You can check the Mr. Christmas website and then locate a retailer from there. If I recall, that’s how I located the Mr. Christmas Symphony Surprise; we got it at Menards for $79.99.

Child's Rocking Chair - Espresso Brown Finish $55.99From Table & Chairs


Child's 2-Slat Rocking Chair – Red $47.78 From Kid Kraft




Angel Line Country Adult Rocker $137.49From Angel Line

My son had poor trunk control and no use of his arms and hands, was wheelchair bound but had good use of his legs and feet. He loved using a rocking chair. The rocking chair gave him the freedom to move around the room and offered support. He would sit in the chair and scoot the chair by moving his feet. The rocking chair helped him practice his balance by constantly working his torso. What is important is that you need the back of the chair to be tall enough to support their back and their head. The top of the child's head should be even with the top piece on the back of the chair since they need head support. You can not leave a child unattended in this chair nor use it near stairs obviously. My son loved to sit in it and scoot over to the window, lean his head on the window and look out. There are many wooden rocking chairs to pick from on Amazon so be sure to check them out and get the right height.







Radio Flyer Pathfinder Wagon Red From Radio Flyer $59.54

My son had poor trunk control and was wheelchair bound. He loved the red flyer wagon and this one is great because it has a taller back which would provide support for kids with poor trunk control. It also comes with a seatbelt. I walked my son every night in his wagon and he enjoyed it more than walks in his wheelchair. You want to make sure that their head is supported by the backrest. I've read some comments on turning and I don't know about that. When my son was small we had the Red Flyer with the wooden sides. I would think you should be o.k. I would recommend the umbrella for days when you want to take a special needs child outside. Often times, they can't wear sunglasses or they fall off so an umbrella would make it easier on them especially if they can't move their head to keep their eyes out of the sun.









Radio Flyer Umbrella Accessory $17.82 From Radio Flyer


You may want to consider this accessory to add on to the wagon. If your child is special needs, they may not want to wear sunglasses or may not have enough head control to keep their eyes out of the sun. Also, on really hot days, you want to keep them from getting sunburned so this is a great idea. I have to wonder if you might also be able to clip this umbrella to their wheelchair.






Elmo Farm Fun Video Play-A-Sound $17.95From PIL

I like this book for several reasons. First, Dear Son loved it when I read books that had some sound for the different animals or characters. From a developmental standpoint, I liked it because he soon learned to "anticipate" when the sound was coming in the story, especially for sounds he liked. That helped me understand what information he was processing in his head. This book goes a step beyond that and not only gives the sound of a horse galloping but shows the horse galloping on the LCD screen. Often times it's helpful for children with disabilities to learn new information when they get information from different senses; in this case, they can "hear" the horse and "see" the horse. I'd recommend this book or other books that are "press and play" so to speak, even if they don't have the LCD screen.







Baby Einstein Press and Play Pal Toy, Panda $34.98 From Baby Einstein

This toy is similar to a toy my son loved. By pressing the hands or feet of the toy, different instruments are activated. My son had no use of his hands but I imagine he would press on the toy with his feet or bite on it with his mouth. You would soon learn which sounds are pleasing or interesting to your child. Also, the music calms them. My son had a similar toy that he used at bedtime and he pressed it often as a way to soothe himself to sleep or when he had seizures.


Cat-One of the best things Dear Son really enjoys is our cat. A cat makes a great pet for a severely disabled child who can’t walk or move much because the cat is active and can do things that will make the kids laugh. The reason I would choose a cat over a dog is simple. With a child in a wheelchair, it’s often too hard to walk a dog with the child or there are many times when you can’t leave the child in the house to go out and walk the dog.

When choosing a cat, I referred to the book ASPCA-The American Society for Prevention of Cruelty to Animals to help me find a cat that met our needs. I looked for a cat that was: 1) good with kids 2) lap cat 3) liked to play.

To this day, Dear Son loves our cat. The cat meows when he wants Dear Son to pet him. I lift the cat up to Dear Son’s bed and then take Dear Son’s hand to pet the cat. The cat kisses (sniffs) Dear Son. The cat also loves to sit on the armrest of Dear Son’s wheelchair before and after school. The cat also loves Dear Son’s art projects from school. He likes art projects with pipe cleaners (now called “fuzzy sticks”, lol). Dear Son gets a kick out of the cat playing with his projects.
Original Slinky $6.87
by Poof Slinky

Plastic Slinky (Colors May Vary) $6.82
by Slinky

Dear Son's occupational therapist recommended a slinky and he loved it. What's great about a slinky for disabled kids is that it doesn't require much movement from the child to get the slinky moving. If a child has difficulty moving or controlling their arm, this is perfect for them.

Stocking Stuffers








Veggie Tales Silly Songs Brush-a-long Musical Toothbrush $3.99 From Veggie Tales

This musical toothbrush runs for 2 minutes-the recommended brushing time. What is great about these toothbrushes is that the handle is wider which would make it easier for a child with special needs who has poor hand control to grip. While you may still need to add padding to make it easier, it's a great start. I used these for lab blood draws to, to distract my son while the tech was drawing blood. I liked musical toothbrushes versus other toys because they were slim and easily portable versus larger toys that were musical.


Spider Man Musical Toothbrush $6.95

Great for a stocking stuffer. Music plays for two minutes. Comes in red or blue. Not only is 2 minutes the recommended amount of time to brush your teeth but I took a musical toothbrush along to a blood draw. I held the toothbrush in front of my child and pushed the button; he was distracted by the music and the lab tech was able to draw his blood without any crying!

Sesame Street Finger Paint Bubble Bath $6.95From Sesame Street

Nice stocking stuffer. This is something to make bathtime fun. The way I would use it for my disabled son was to use the paints to write "I Love You" or something on him at bathtime. It's hard when your child can't play with something but you still can do things to make bathtime fun for them.

Hohner Kids Single 5" High Cage Bell, Assorted Colors $4.80From Hohner Kids

Nice stocking stuffer. This price is for one bell. Dear Son liked this type of bell-he would pick it up between his toes and shake it.

These are my absolute best toy/gift ideas for special needs children. I hope this list will help you find some gifts or give you some ideas for your special needs child. In the future, you can click on the store link at the top of my blog and it will link you to any and all gift ideas.

Note: Dear Son is twenty two years old and suffers from seizures, dystonia and is severely delayed as a result of a random mutation of the ARX gene. He also has a progressive neurological disease.

Thursday, October 31, 2013

Halloween Wheelchair "Voice" Costume!

Happy Halloween! 



It's been ages since I posted but the truth of the matter is that life has been pretty busy since I moved into our new townhome.  Basically, Matt is no longer in school anymore so I don't have any free time at all. Scott (my ex husband) takes Matt every other weekend from Saturday night until Monday morning so I have around 24 hours to get things all my errands, any house projects and anything else I want done.  It's really hard work caring for Matt 24/7.  I don't mind but I have to hustle every day to get everything done. I cook everything from scratch for him, prepare all of his meals, feedings (he gets one cup every hour so feedings take 2 hours) plus getting him up, changing him, dressing him, taking him out for walks and moving him with the hoyer lift. It all takes time.  He's a big man to move and it's a lot. Anyway, on to the fun stuff!

I decided to make a "Voice" costume for Matt this year. I like to select costumes where it's natural for the person to be sitting down since Matt is in a wheelchair.  In addition, I wanted to kick it up a notch this year, and send out a card.  Since Matt is non-verbal, I decided to add the words, "Because everyone needs a voice." to the card.  I think it's important for everyone to be heard and it's just a fun reminder to acknowledge the disabled.  I would give the world to be able to talk to Matt, to have a conversation with him, to find out what he likes and what is in his heart. I'd love to know what he's thinking about.  I do know what makes him smile but it would be pretty good to hear him talk. Matt's only spoken 5 words in his life. They are: hi", "Mom" and "I love you".  The "I love you" isn't really intelligible to most people but I know what he's trying to say.  He hasn't said the "hi" or "I love you" in years and only recently started trying to say, "Mom" again. I melt every time he tries to say it. It should not be hard to say "Mom".  (Here's a picture of me, lol.)


One thing that changed for us was that when we lived in our studio apartment, I could hear Matt if he needed me at night. Matt's bed was on one end of the apartment, the living area and kitchen were in the middle and my bedroom was on the other end. It was a very pretty apartment and if Matt needed to be changed at night or needed anything, he'd make a noise and I could hear him. In our new townhome, our bedrooms are next to each other but you have to go into the hallway to get to his room. As a result, I can't hear Matt breathe at night very well from my room. If he needs to be changed, he coughs "once".  He coughs "once" when he needs to be changed and sometimes he justs "coughs" to clear his throat. That means, I have to jump up and go and see if he needs to be changed or if he's o.k. It's a lot of work and when I am tired, I always pray that I'll hear him when I am sleeping. Sometimes, I wake up and wonder if I really heard him or if I was dreaming. I don't ever want him to lie in pee at night and it's stressful.  Matt doesn't have the strength to cough more than once so I have to be on my toes! It makes you appreciate all of the gifts you have when you understand how difficult it can be for the disabled.  That's kind of why I thought the phrase, "because everyone needs a voice" was a perfect tie in to his costume this year.

Since Matt is getting older, I thought I'd create a card and send it out for Halloween instead of Trick or Treating. He's a little old for that although if I could get away with it, I'd parade him all over the neighborhood because it's such fun! I still like to celebrate the holidays with him and I love creating costumes for him. And yes, I'll probably create them until he's 50 years old, lol.  I just love that young man and it's hard not to celebrate him. 

Here are a few pictures of his costume:











In other news, September marked three years Matt's been hospital free from pneumonia.  Since I started Now Foods Organic Virgin Coconut Oil, Matt's never been hospitalized since for pneumonia. This is huge because Matt used to get three pneumonias a year.  I give him the coconut oil plus a blenderized diet made with mostly organic foods and made from scratch and it's kept him healthy.  We did have some issues the past few months with seizures and secretions however. Matt's neurologist was sick and out for a few months so we saw the Nurse Practioner (in May) to adjust his Vagus Nerve Stimulator however she did not set the device at the proper setting. Matt had the new device replaced last November and they were ramping it up however she failed to increase the setting to his previous level (the level he used prior to the replacement). As a result, Matt had seizures for months which meant he had a lot of secretions. I had to do breathing treatments daily to manage the secretions (the increased seizure activity caused the increased secretions). Then I was up a lot at night making sure he could breathe.  We went to the neurologist last week and the nurse mentioned that the setting wasn't correct. They adjusted the setting and Matt's seizures decreased dramatically and he hasn't need any treatments.  I can't begin to tell you how much sleep I lost over the past 5 months let alone that Matt suffered.  I am glad the neurologist is back! I was unaware that the setting was too low or I would have mentioned it.

We also got to show off at the neurologist's office last week. Matt is now able to sit up in a portable wheelchair and use his feet to move it.  Granted, Matt can't sit up very long (less than 5 minutes) but he hasn't been able to do this in almost ten years.  He had a little trouble getting his left foot moving and then the doctor and nurse started cheering him on and  clapping and he was able to move his feet a bit. Dad pushes the wheelchair to help him but it's pretty amazing considering that he couldn't even move a toe in 2010 before I started the Now Foods Organic Virgin Coconut Oil and his blenderized diet.

Anyway, Matt looks great. I am so blessed to have such a wonderful son. Matt grew up into the nicest young man a mother could ever have.  I hope you have a Happy Halloween.
 

.

Related Posts Plugin for WordPress, Blogger...

Blog Archive