Dear Son was admitted to Big Academic Medical Center yesterday for pneumonia. I called the paramedics at 5 a.m. on Friday morning since he was breathing rapidly and shaking severely from the chills. His teacher had contacted me the day before and told me he had a fever of 99.8 in the afternoon and I began treating the fever with Motrin when he got home from school since it was starting to rise and again at midnight. Although I managed to get the fever down, by 4 a.m. on Friday morning he was breathing quite heavily and hard so I thought I'd take him to the Emergency Room. Before I could finish getting dressed, he began to have more respiratory distress, breathing rapidly and shaking severely from the chills. I took his temperature and it was normal (due to the Motrin I gave at midnight) however I became very uncomfortable and called 911. The paramedics arrived and his oxygen saturation was 88-92%, he was ice cold from the chills/shivering and his temp was normal. They took him to the nearest local ER. Upon arrival, they took a rectal temp and it had increased to 104 degrees. They began treating him however I was uncomfortable and requested a transfer to Big Academic Medical Center. Around 7 a.m. I paged Dear Son's doc and then called him at home. He arranged for the transfer. Due to impending storms, the helicopter was not allowed to fly so he was transported via ALS.
Big Academic Medical Center was able to stabalize him and he's now out of the Pediatric Intensive Care Unit. He has pneumonia. Other test results, include blood cultures, are pending. He is being treated with Ceftriaxone and Vancomycin. He is not vented and on oxygen at 100% so that is good. He seems relatively stable although there is still some difficulty controlling his fever and he continues to work pretty hard at times to breathe. He has been sleeping continuously since this began with the exception of opening his eyes once this morning and once yesterday afternoon.
At the present time, the cause is not known. He has had great difficulty over the past few months with choking episodes at night, that are due to his inability to manage his saliva, which is part of the progressive motor dysfunction and progressive degenerative disease. I had been working with the ENT to exhaust the non-surgical options prior to treating it surgically.
It is my understanding that they will run the full course of the antibiotics so I suspect we may be there a while.
I have extremely limited pc access but I will try and keep you posted.
A midwest mom shares and reflects on the love for her Dear Son Matthew and the challenges of everyday life with a severely disabled young man. In addition, she shares her love for decorating, organizing and keeping a clean home. ©2006-2024. All Rights Reserved.
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25 comments:
Oh, jeez.
All the very best to you both - here's hoping you're home safe and sound very soon!
Keeping you and Dear Son in my thoughts.
I'll be thinking of you two. Hang in there.
I came here tonight, because I was thinking about you. Wondering how you were doing, how dear son was doing.
I've thought a lot about you in the last 10 days. My husband is critically ill in the hospital. Some respiratory issues due to the post polio syndrome. We have no answers at this point. We are waiting for admittance to a long term care facility to see if he can go off the breathing machinery ... and to see what changes life has brought us.
We do know that life, as we knew it, is over.
My prayers are with you, been thinking a lot about you this last week.
You and dear son will be in my prayers.
I'm so sorry to hear that Dear Son is so ill. I'll be praying for you both.
I hope that he gets better soon!!
All of our prayers are with you and Dear Son tonight.
Take care of yourself as well.
(((hugs)))
Thim
Praying for you both!
You and DS are in my prayers.
Holding you and DS in my prayers.
Hearts and prayers are with you and dear son. Hope they can get to the bottom of this soon and he will be on his way home.
HUGS!
So sorry to hear the news.
DM, I am drawn here a few times a week, usually, to check in on you and DS. I dont even know your names, where you live, anything "real" about you. And yet, I care deeply about you and him, and want to know you are well. I checked in an extra time this week, just now, for some reason. Glad I did. While you and DS are always near in prayer, I will redouble my efforts tonight.
I hope that he and you both are comfortable, cared-for, and treated with the utmost respect. Give him a gentle hug, and take care of yourselves. Michelle
You and DS are in our thoughts and prayers.
I'll be praying for you and Dear Son. Given what you've written in the past I'm guessing that Big Academic Medical Center is attached to the University I attend. You will both be in my thoughts as I walk around campus and past the hospitals. God bless you.
Dream Mom,
Keeping you and your dear son in our thoughts and prayers,
Hugs,
Lisa
mum to Mitch & Harry
Australia
praying that you both are receiving good care, peace , and
comfort
Thinking of you both.
Megan
Keeping you and ds in my thoughs and prayers
JoDee
I am thinking about you and hope DS gets out and is better.
I'm praying for you.
-Sara
DS is in my prayers. Sending our love and prayers he recovers quickly.
my heart is with you and your son.
As always you and DS are in my prayers.
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