Dear Son Medical Update

Since my last post, Dear Son continued to have seizure issues. It was difficult to determine whether or not the Felbatol was actually working and during his seizures, he began yelling, getting very hot and turning red, almost as if he were going to explode. A decision was made to cut the Scopolamine patch in half last week. Since that time, he strugged with his secretions and choked quite a bit. In addition, we attempted to increase the Felbatol to see if it might result in an improvement of the seizures. It seemed initally as if it might be helping however I could never be confident in my decision as to whether or not it was really effective.

In the interim, we were waiting for a hospital admission to do another EEG. Big Academic Medical Center is down to two techs right now so an admission was not in the cards until next week. In the meantime, Dear Son continued to choke and began running a fever today. I contacted Ped Neuro Doc and he suggested I take him to the ER for a chest x-ray and labs. I did that and they confirmed that Dear Son has aspiration pneumonia in his right lung (lower lobe and up into the middle). They started him on Zosyn and Vancomycin via the IV along with some chest PT. We will most likely be there a week or so until the antibiotics run their course. We still need to address the seizure issue so I really can't be sure.

I'll update when I can. In the meantime, I need to get back to the hospital.