Friday, October 30, 2015
Happy Halloween! Donald Trump wheelchair costume!
Matt is doing fairly well. We are having some issues from time to time with his breathing. A few weeks ago he almost went into respiratory failure. He was not sick or anything and he was actually on 3 liters of oxygen when it happened. He is on night time oxygen because he stops breathing at night sometimes and this occurred in the morning. I tried turning up the oxygen and when that didn't work, I knew he was in trouble. I immediately got him out of his bed and put him into a chair to sit him upright and he recovered. I spoke to the doctor previously about what to do in case of an emergency or if he had some breathing issues. He had suggested sitting him upright since he can move oxygen around much better that way. I contacted his doctor and we did some xrays and even though Matt was not sick it appears that there is some scarring in his lungs from all of those pneumonias and Matt has some damage from all of that. He is not able to move air around very well. We will follow up with the doctor again to see if there's anything more we can do for Matt. He isn't sick and he's doing quite well right now so that is good. We see the head of adult pulmonary at big academic medical center. He is also the medical director over the ICU. He is an expert in ventilation, respiratory failure, acute respiratory distress syndrome and a host of other issues, all of which Matt has had, lol. So I do believe we have the right guy.
Other than that, things are okay here. Will try to post when I when I can.
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