Saturday, March 03, 2012
I wanted to share some pictures of Dear Son. We went to the opthalmologist a little over a week ago for a follow up visit and some lab work. We were at Big Academic Medical Center for several hours. During that time, I couldn't help but notice how different he is versus a few years ago. He was happy, holding his head up, sitting up straight in his wheelchair and looking around. He had a grand time watching everyone. By the time I realized how good he looked, I tried taking some pictures with my camera phone but by then, his eyes were dilated and they weren't as good. Since I've been blogging for six years and taking so many photos of him, I can't help but notice how different he looks now that he is well. The real food blenderized diet is working so well. He just looks better. It's as if a veil has been lifted and now that all of the sickness is gone, he can just be himself.
I took these photos at 7 a.m., right before he went down on the bus. I asked him to smile and he was all smiles for the camera. His one on one aide at school said he smiles from the minute he gets there until the moment he comes home.
You can see he still has some strabimus however we won't be during surgery for that any time soon. He had strabimus on his one eye when he was ten or so however since he's a high surgical risk, we won't be doing the other eye any time soon.
We met with the nutritionist last week that specializes in blenderized diets. Nothing really new; it appears I have been doing a stellar job. His calories, water and his weight are all appropriate for his height. She had some minor tweaks that I'll incorporate but overall, things are going well.
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