tag:blogger.com,1999:blog-22370535.post8110112853147846745..comments2023-12-11T04:28:04.590-06:00Comments on Dream Mom: Dear Son Medical Update~ProgressDream Momhttp://www.blogger.com/profile/18351348027973964625noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-22370535.post-73034627800338717002010-01-15T10:30:38.223-06:002010-01-15T10:30:38.223-06:00Thanks, everyone for your comments.
Susan-Glad my ...Thanks, everyone for your comments.<br />Susan-Glad my perspective helped. <br />Lois-You are right! Maybe we caught that just in time.<br />MFA Mama/Sara-I am so glad to hear you say that.I am glad I am not the only one who worries about the caths! <br />Kristin-Thanks for the compliment about being an MD. While I am certainly a "take charge type" (my sister calls me bossy), I have a Dream Momhttps://www.blogger.com/profile/18351348027973964625noreply@blogger.comtag:blogger.com,1999:blog-22370535.post-65786571719254671422010-01-13T23:25:20.025-06:002010-01-13T23:25:20.025-06:00Hi, Dream Mom,
I'm a mom of an 18-year-old wi...Hi, Dream Mom,<br /><br />I'm a mom of an 18-year-old with an undiagnosed disability. I've bookmarked your blog. Thanks for being out there and being open. I first came across your blog when I saw that someone actually had suggestions for gifts that you can give a disabled child. I was reading our story. As I read more, the details are different, but the heart is the same. We have the Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22370535.post-13201242151251027682010-01-12T20:02:17.615-06:002010-01-12T20:02:17.615-06:00Have you ever considered officially becoming a Doc...Have you ever considered officially becoming a Doc? I say officially cause ya really are unofficially. I know you need the M.D. and getting that in your copious free time is probably not feasible. I just think you'd be amazing... knowledge, compassion, personal experience. You got it all. I know it isn't an outlet for your creative talents but your med knowledge is impressive.Kristin@Boulevard Interior Designhttp://www.boulevardinteriordesign.comnoreply@blogger.comtag:blogger.com,1999:blog-22370535.post-87303474346990967832010-01-12T10:22:34.755-06:002010-01-12T10:22:34.755-06:00Oh my gosh, that is a lot going on! I am glad tha...Oh my gosh, that is a lot going on! I am glad that it seems he is in less distress now and they may have gotten to the bottom of DS's problems. The bladder is such a tricky thing. We catheterize every four hours, but I almost never let anyone in the hospital do it. I do it myself. Now we have a Mitrofanoff stoma, so it is easier. I hope that DS gets to come home soon, with his pain Anonymoushttps://www.blogger.com/profile/03768691381693366027noreply@blogger.comtag:blogger.com,1999:blog-22370535.post-39687727267369399072010-01-10T13:11:10.213-06:002010-01-10T13:11:10.213-06:00You are SUCH a good mom and caregiver, and I know ...You are SUCH a good mom and caregiver, and I know how challenging it can be advocating for a nonverbal child (clarification: all of mine are verbal NOW but during most of his hospitalizations my youngest was an infant) with medical staff at times. I'm with you on the catheterization thing--would you believe that our geneticist wanted my son cathed to get a urine sample for a test to see if MFA Mamahttps://www.blogger.com/profile/11052734298141262385noreply@blogger.comtag:blogger.com,1999:blog-22370535.post-70936705156775622602010-01-10T12:32:11.494-06:002010-01-10T12:32:11.494-06:00wow, that's a lot going on. Sounds like they m...wow, that's a lot going on. Sounds like they may have the answer and maybe headed a potential issue off at the pass.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22370535.post-49236422977045087272010-01-10T11:39:18.602-06:002010-01-10T11:39:18.602-06:00You are such an awesome advocate for DS and a very...You are such an awesome advocate for DS and a very important part of his medical team. I have learned so much from you, all that I can use in caring for ICU patients and their families. I will keep DS and you in my thoughts and prayers.<br />SusanSusanhttps://www.blogger.com/profile/04807650188435411715noreply@blogger.com