tag:blogger.com,1999:blog-22370535.post114603291479648790..comments2023-12-11T04:28:04.590-06:00Comments on Dream Mom: There’s No Place Like HomeDream Momhttp://www.blogger.com/profile/18351348027973964625noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-22370535.post-77864688335731369772008-05-03T17:56:00.000-05:002008-05-03T17:56:00.000-05:00Hi everyone. I am new to blogdom and just came ac...Hi everyone. I am new to blogdom and just came across this site. My brother in law is severely disabled and lives in a group home here in Utah. I do believe that most parents do what they think is best for their children, and agree with one blogger who wisely asked us all to avoid judgement.<BR/><BR/>The reason for my post is that our family feels the care my bro in law is receiving at his kmhttps://www.blogger.com/profile/03313003872791462653noreply@blogger.comtag:blogger.com,1999:blog-22370535.post-1146996417849454962006-05-07T05:06:00.000-05:002006-05-07T05:06:00.000-05:00This is such a touching story; I have linked to it...This is such a touching story; I have linked to it. About the respite and day care--I too wondered about someone with the experience in healthcare starting something. Dream Mom looks like the Dream Candidate to me.<BR/><BR/>However, if you click over to the Heinzerling Foundation here in Columbus, OH, you may see a large organization with a lovely webpage. I've lived here about 40 years, and Normahttps://www.blogger.com/profile/11502895616873273470noreply@blogger.comtag:blogger.com,1999:blog-22370535.post-1146727431577581842006-05-04T02:23:00.000-05:002006-05-04T02:23:00.000-05:00Thanks. I've spent more hours in Children's hospi...Thanks. I've spent more hours in Children's hospitals than I care to think about. <BR/><BR/>I've seen several kids who spent days/weeks in hospitals without their parents ever visiting. I know that there are situations where that can't be helped, it's just that I would have done anything to be with my child through every minute of her stay in the hospital, I was always able to, I don't know Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22370535.post-1146676009882514832006-05-03T12:06:00.000-05:002006-05-03T12:06:00.000-05:00What a heart-wrenching story. Unfortunately, in so...What a heart-wrenching story. Unfortunately, in some states (such as my own Virginia) there are still more institutional beds available than there are dollars for Medicaid waivers to help support people in their own homes. Sadly, this includes children. People think children do not get admitted to "homes" anymore. Not true.<BR/><BR/>Your other ideas are great ones! I wanted to make sure you knew maryhttps://www.blogger.com/profile/13676320118022536221noreply@blogger.comtag:blogger.com,1999:blog-22370535.post-1146660715071997922006-05-03T07:51:00.000-05:002006-05-03T07:51:00.000-05:00Parents do strange things sometimes...when I was e...Parents do strange things sometimes...when I was eight, my mother was diagnosed w/ lymphoma and a rare fast-moving lung cancer. She told my father not to tell us kids. He didn't. So, when she was dead ten days later, it was so shocking, that I have vowed NEVER to keep anything even slightly major from my children. I love my mother, but I think not facing up to your kid and telling them what'sAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-22370535.post-1146593277366147512006-05-02T13:07:00.000-05:002006-05-02T13:07:00.000-05:00Thanks for writing this. I want to take every litt...Thanks for writing this. I want to take every little child like that boy and take them home with me. I have nothing but respect for parents like yourself who take care of disabled kids 24/7 without a break, lifting and washing and doing treatments and giving tube feedings and everything else. Once, I had a family who had triplets. 2 boys, who were healthy and a little girl who had a bleed after Shighttps://www.blogger.com/profile/13931443064683608149noreply@blogger.comtag:blogger.com,1999:blog-22370535.post-1146204728564461162006-04-28T01:12:00.000-05:002006-04-28T01:12:00.000-05:00Thanks for all of your comments. WIP, yes, I have ...Thanks for all of your comments. WIP, yes, I have heard of them! As for the foundation, that's a lot to take on right now, but when I am ready, you will be the first to know!Dream Momhttps://www.blogger.com/profile/18351348027973964625noreply@blogger.comtag:blogger.com,1999:blog-22370535.post-1146114631507835562006-04-27T00:10:00.000-05:002006-04-27T00:10:00.000-05:00Dream Mom -- I did software training & support for...Dream Mom -- I did software training & support for VERSYSS -- ever heard of 'em? They're now part of Emdeon, aka WebMD.<BR/><BR/>And I bet ADAPT would have some info to help you -- and lots of places would probably be into giving grants for this sort of thing, like the Bill & Melinda Gates foundation, Steve Young's org, etc.<BR/><BR/>I'll be your personal assistant! :)Wrkinprogresshttps://www.blogger.com/profile/11856828776670191811noreply@blogger.comtag:blogger.com,1999:blog-22370535.post-1146097665739482542006-04-26T19:27:00.000-05:002006-04-26T19:27:00.000-05:00What an image of that poor little boy.You can say ...What an image of that poor little boy.<BR/><BR/>You can say what you will about the lack of services or help for us parents, and God knows I agree with you! But I doubt that all of the help in the world would have changed this child's outcome. <BR/><BR/>Anyone who could discard a child that way - I just can't imagine.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22370535.post-1146095418558226682006-04-26T18:50:00.000-05:002006-04-26T18:50:00.000-05:00There is such a need for daycare and respite servi...There is such a need for daycare and respite services....why hasn't anyone put together a business model for something like this.<BR/><BR/>Daycare that specializes in disabled kids. REAL daycare, with outings and stimulation. Respite caretakers who are trained to deal with tubes and feedings, etc. One day, one week.<BR/><BR/>I am doing the Blogging Against Disabilism, too, although on a scale of Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22370535.post-1146074553742992572006-04-26T13:02:00.000-05:002006-04-26T13:02:00.000-05:00Thanks for all of your comments. Becca, I'll be s...Thanks for all of your comments. Becca, I'll be sure to check it out. And yes, I am aware of the equipment out there (I have a Hoyer Lift in my dining room) but the Hoyer Lift is bulky and takes so long to use that I can lift him in a few seconds and I get a nice peak to my biceps to boot:)<BR/><BR/>WIP-I hadn't thought about that. My healthcare background is that of an Account Manager, as in Dream Momhttps://www.blogger.com/profile/18351348027973964625noreply@blogger.comtag:blogger.com,1999:blog-22370535.post-1146071780177351922006-04-26T12:16:00.000-05:002006-04-26T12:16:00.000-05:00As you know, my sister-in-law Mary is in a group h...As you know, my sister-in-law Mary is in a group home for mentally disabled people. My husband arranged for her to live there years ago. The reason for her placement was because his mother was unable to care for her. Had his mother been able, she would have stayed at home with her until their mom died. Then, of course, she would have had to go into the group home anyway. <BR/><BR/>Fortunately, Wrkinprogresshttps://www.blogger.com/profile/11856828776670191811noreply@blogger.comtag:blogger.com,1999:blog-22370535.post-1146044599965550902006-04-26T04:43:00.000-05:002006-04-26T04:43:00.000-05:00Hi Dream Mom, me again I'm afraid.I just wanted to...Hi Dream Mom, me again I'm afraid.<BR/><BR/>I just wanted to draw your attention to <A HREF="http://blobolobolob.blogspot.com/2006/04/blogging-against-disablism-day-1st-may.html" REL="nofollow">Blogging Against Disablism Day</A> and thought you may be interested to read, and/or participate. You seem to have fallen in very much with the medical/nursing side of blogging but as a mum (mom) of a Rhttps://www.blogger.com/profile/15436653419185638854noreply@blogger.comtag:blogger.com,1999:blog-22370535.post-1146039597695001962006-04-26T03:19:00.000-05:002006-04-26T03:19:00.000-05:00Dream Mom, you already have that mental strength, ...Dream Mom, you already <I>have</I> that mental strength, it shines through in all of your posts, and as for the physical... well, there is technology to assist you there, if and when you want it. Dear Son's living at home is not dependant on your or anyone else's being able to lift him. <BR/><BR/>I can pull up some more information about that kind of gear, if you want, but I expect you probably Rhttps://www.blogger.com/profile/15436653419185638854noreply@blogger.comtag:blogger.com,1999:blog-22370535.post-1146036691245597782006-04-26T02:31:00.000-05:002006-04-26T02:31:00.000-05:00It has never ONCE occured to me to put my daughter...It has never ONCE occured to me to put my daughter in a home. I thought such things were "in the past", and a side effect of ignorance. However, I know of a couple that has done just that--put their handicapped daughter in a home. It's called a "school", but I don't care, it's an institution, and it's physical/emotional abandonment (not financial, mind you, but what child cares about that?).<BR/>Kellyhttps://www.blogger.com/profile/00672853334159695888noreply@blogger.com